Saturday, March 5, 2022

Mourning Glory

This is the beginning of a story I began writing after my first husband's death.  I got a little further with it and had to stop.  I was still grieving.  I was thinking about picking it up again but the problem is my idea was to have my character experience multiple worlds, as if her husband hadn't passed away.  Not too long ago, I read The Midnight Library by Matt Haig and realized the similarities.  So, I don't know what to do.  I might change it to a Dark Shadows fan fic.

Anyway, here is the beginning of the story.  Only the names have been changed to protect family members.

Anne’s eyes opened wide in the dim bedroom.  Sleepily befuddled, she wondered where her husband Rob was.  His heart was skipping beats again last night and he’d decided to stay downstairs to watch TV, she recalled, rolling hurriedly to look at the clock.  It was almost exactly 5:30, which was when Rob would get up every morning to start making lunches with their son, RJ.  Beep beep.  That was RJ’s alarm going off now.  Anne sat up abruptly and swung her legs over the side of the bed.  I have to get downstairs before RJ, she thought. 

Anne felt sick with dread as she stumbled, still sleepy, into the hall and to the staircase. RJ reached the head of the stairs before his mother and began racing down.  Her legs were as heavy as split logs as she began to descend the stairs. She wanted to run but her body would not respond.  In spite of the feeling of foreboding, she became frozen to the step when RJ cried out:  “Mom, Mom, I can’t wake Dad!”

You should have taken him to the doctor last night, she berated herself as numbness began to spread from her feet to her knees and on up her legs.  Inexplicably, she could make herself run now. This is all your fault.  Another part of me answered the accusation.  It can’t be.  Rob probably just fainted.  That’s all.  

RJ blocked her way now, running up to meet his mother as she came down.  Time slowed it was if they were moving at warp speed – but in slow motion.  “Mom, do you know CPR?”  His face was ashen with shock.

CPR?  She’d seen it done on television many times but had never actually performed it herself.  “Call 911,” she told RJ.

As he turned to run to the phone, Anne got her first look at Rob.  His face was gray, arms and legs splayed out as if he was sleeping.  Let him just be unconscious, God, please!  Anne prayed silently as she knelt beside Rob, looking into his face.  She didn’t need to touch him to know that he was gone.  His eyes were closed, his lips parted slightly.  He might have been asleep except that his forehead was a mottled purple.  The blood pooled there, she thought to herself.  She’d taken a mystery writing course and had learned about pooling blood after death.

“Rob, no!”  She cried out.  She could hear RJ on the phone, rattling off information to the dispatcher.  He was on the verge of tears, yet he remained composed enough to give all the important details. 

Mechanically, Anne leaned over to pinch Rob’s nose and cover his lips with hers.  He was colder than anything she’d ever touched before.  She knew he was gone already but wasn’t prepared for RJ to know right now.  He’d only just turned 14.  Anne paused and her breath came whistling out of Rob’s mouth like an irritated sigh.  Did he resent having his body disturbed like that?  She crossed my hands just below his ribs and pushed.  There was another protesting sigh.

“Mom, is that how you do CPR?”  RJ asked from behind.

She had no idea.

“Aren’t you supposed to be higher?”

She positioned her hands slightly higher, not wanting RJ to see this.  “Listen, go outside and wait for the ambulance while I work on Daddy,” she said to him.  He seemed relieved to bolt out the door.  Now she could relax.  She sat back on my heels and gently caressed Rob’s cheek, her eyes blurring with tears.

“What went wrong, Rob?  It’s not supposed to end like this,” she told him through her tears.  For almost 14 years they’d both known that his sudden death might happen at anytime but she was still unprepared for it.  It just wasn’t fair.  I should have called the doctor back, she thought.  A siren screamed, shattering the quiet.  The ambulance was close.  She realized I wouldn’t have much time left with Rob.  She brushed at his hair gently.

“Do you guys know CPR?”  RJ asked, opening the front door.  Anne looked up and saw two policemen.  The ambulance hadn’t arrived yet, but she could hear more wailing sirens approaching.  “Can you save my dad?”

Anne stood up slowly, not wanting RJ to have to watch.  She’d learned to detach herself from her feelings years ago, growing up with alcoholic parents. Drawing in a deep cleansing breath, she said calmly, “Listen, RJ, I need you to take your sisters across the street for me.”  

RJ looked at his mother with wide, stunned eyes as she added as an afterthought to the policemen, “Would you excuse me?  I’m sending the children across the street.”  

Anne’s feelings had to be left behind if she was to function.  She watched herself walk past the policemen to go upstairs.  The men moved back respectfully.  Anne found her daughters awake and terrified, crying, already fully dressed.  She put her arms around both of them and they clung to her.

“What’s going on?”  asked her older daughter, Sarah, who was 12.

“Dad needs to go to the hospital,” she explained calmly.

“Is he going to be all right?”  Ashley asked, tears rolling down her cheeks.  She’d inherited her tall gene from Rob.  At 9, she was almost as tall as Sarah.

“I don’t know,” their mother answered.  She didn’t like lying to them but wasn’t ready to tell them their father was gone.  “I need you two to go across the street with RJ to Mrs. Larson’s house.  I’m going to have to go with Dad to the hospital.  So let’s go down quickly, okay?”

She led them down the stairs.  RJ was standing in the hallway, tears welling in his eyes as he watched the newly-arrived EMTs beginning to work on Rob.  “Go—now,” I said to the kids and all three of them scurried out the door.  “I just need to call my neighbor,” I said to one of the officers, darting by them to pick up the phone.

Anne trembled slightly as she fumbled with the phone.  He must think I’m out of my mind, she thought.  It’s so obvious that Rob is gone and here they have to keep working on him because I called 911.  I had to protect the children, though, and there’s nothing more I can do to help Rob.

Vicki Larson picked up on the second ring.  “What’s happening?”  she asked. 

 “Listen, Terri, the kids are on their way over.  They need to stay with you, all right?”

“Of course,” Terri answered immediately.  “Is everything all right?”

“No,” I mumbled into the phone.  “It’s Rob—he’s gone.”  She hesitated as Vicki gasped and then added, “The children don’t know yet.  I know we have to go to the hospital. I’ll tell the kids when I get back.”  She hung up with Vicki’s assurances she’d watch the kids as long as necessary.

One of the policemen approached her as she hung up.  “Ma’am, come on with me,” he urged softly, taking my elbow.  “Let’s go in the kitchen.  Can I get you anything?”

“It doesn’t look good,” an EMT said, looking up at Anne. 

She couldn’t see Rob anymore.  He was surrounded by EMTs.  Another EMT was on the radio, talking to the emergency personnel at the hospital.  “You don’t have to be careful with me,” she said to the first EMT.  “I know he’s already gone.”

The policeman led Anne into the kitchen and pulled out a chair for her to sit on.  “Can I get you anything?” he asked again.

“Maybe some coffee,” Anne answered vaguely, wondering how anything could possibly help her feel better.   Still, she was used to drinking an entire pot of coffee over the morning hours.  “I’ll make it.”

“No, ma’am, that’s all right.  You stay where you are and I’ll make it,” he said.  Gratefully, Anne sat back down.  It was odd to watch her body move and hear her voice speak from so far away.  Is this an out of body experience?  She wondered irreverently.

As the policeman made the coffee, she automatically launched into the first of many retellings of what she would later call “The Story.”  By the time she got to finding Rob on the floor, her feelings slammed back into her body and she began to cry.  As her body began to quake with the shock of what happened, the policeman said nervously, “Listen, ma’am, you have to take it easy, okay?  Don’t fall apart—it’s not easy, but you have to be strong.  You’re going to have to make a lot of decisions today and your kids need you.”

Of course!  That was the way it had always been.  She needed to put her feelings on the backburner for now.  She nodded at his words and took a deep breath to pull herself back together.  The policeman placed a steaming cup of coffee gently into her hands.  Automatically, she sipped at it.  The familiar perked scent and the bitter taste provided some comfort that some things were still normal.

One of the EMTs came into the kitchen.  “We’re ready to go,” he announced.  He looked at Anne.  “Do you want to come with us?”

“Of course!”  Anne snapped irritably, misunderstanding. 

“I’ll take her,” the policeman put in quickly.

Anne suddenly remembered all the pills that Rob took.  “The prescriptions!  Should I bring them?” 

“I can get them,” the policeman volunteered.  “Are they in the bathroom?”

“No, under my desk,” Anne answered.  She got up and went into the dining room.  Her desk was in the adjoining living room where Rob was lying.

“Uh, we don’t need to do that,” the policeman said from behind but Anne was moving too fast.  She realized he was trying to spare her the sight of the EMTs struggling to get poor Rob on the stretcher. 

He won’t fit, Anne wanted to warn them.  The words wouldn’t come though, so she bent over to retrieve the bag of prescriptions.  They’d just had them filled by mail order.  There must be hundreds and hundreds of pills in here, Anne thought.  Would the hospital want them so they don’t go to waste?  I’m sure someone needs these things

The policeman moved in front of Anne so that she couldn’t see what was happening in the living room.  “Let’s just wait a minute until they all get out the door,” he suggested.

Thank God for understanding cops, Anne thought.  Once the EMTs cleared the door, he took her elbow again and led her outside.  As the medics tried to lift the stretcher into the ambulance, she got a quick brief glimpse of her husband.  His face was pasty gray in this early morning light.  His eyes were still closed, his arms outflung.  Curious neighbors were approaching.  Through the window across the street, I could see Mrs. Larson and RJ watching.

Anne and the policeman trotted to his car.  She got in beside him and looked down at the ground as we pulled away.  She didn’t want to see her neighbors right now. 

Was there any conversation in the car?  She didn’t know.   The hospital they drove to was small and served the immediate community.  The last time he was hospitalized, a month ago, he’d been in a teaching hospital.

The ambulance arrived moments before the squad car did.  Anne watched nurses and doctor swarm around ambulance as the EMTs struggled to get the stretcher out and onto the pavement.  She closed her eyes as the patrol car slowed down to wait.  The policeman waited for everyone to go into the emergency bay before dropping Anne off just outside the door for family members. 

“Thanks,” Anne said automatically as she got out of the car.  She fought off waves of dizziness and nausea.  She was out of her body again, watching herself walk stiffly into the emergency waiting room.  The joints in her arms and legs felt frozen.  She imagined that she looked like the Tin Man from “The Wizard of Oz”.  She needed an oil can too.

“Excuse me,” she said softly to the woman behind the window.

“Yes,” she replied.  “Just have a seat and the doctors will call you.”

Anne thought she should call my brother-in-law, Rob’s brother Dan.  Maybe the police would give her a ride home but she couldn’t be sure.  Besides, the family needed to know.  She looked up at the clock as she placed her call.  It’s almost seven, she marveled to herself.  Almost an hour!  She hoped Dan was awake.

He answered almost immediately.  It was one of the few times she’d ever talked to him on the phone and she couldn’t tell if he was sleepy or wide awake.  He always sounded the same.  Her voice faltered a little as she explained where she was.  “RJ and I found Rob on the floor,” Anne continued.  “This is bad, Dan.  I’m sure he’s already gone.”

For a moment, Dan didn’t say anything.  “I’ll call Dad,” he finally answered.  “I’ll be there in a little bit to pick you up.”

No sooner did Anne hang up the phone when a nurse appeared and called her name.  Numbly, she followed her to a small office.  “Please sit down,” she said gently.  She had something in her hand and took Anne’s in the other.  She pressed Rob’s wedding ring into Anne’s palm and she totally broke down. 

He’d never ever taken off the wedding ring – ever.  Anne remembered the indentation of the ring on his finger.  It looked like it hurt and so she’d say, why don’t you take it off?  He’d always just give her a sidelong glance and smile.  “I don’t want to,” he’d say.  The only way Anne could be holding it now was if Rob was really, truly dead.  That is when the realization hit her that yes, he’s really gone forever.

The nurse handed Anne a tissue and patted her arm.

“Can I see him?”  Anne asked.

“Of course,” she said kindly.  “You can go in a minute.  I just wanted you to understand that the doctors had to act when your husband was brought here.  There’s a tube in his throat.”

“Okay,” Anne said, wondering why they had to do that if Rob was already dead.

“Do you want to go see him now?”

“Yes,” she answered and then remembered something.  “Rob wanted to be an organ donor.  Is that still possible?”

The nurse looked surprised and then said, “It’s too late for the major organs, but he can still donate his eyes, his skin, muscle tissue, and bones.  Do you want to do that?”

“Yes,” Anne whispered.  “He would have wanted it.”  I’m going to make sure your wishes are fulfilled, Rob.  As many as I can.

The nurse walked her into the room and then left quietly.  Anne stood looking at Rob for a moment.  He was covered to the neck with a sheet.  He still looked as if he was sleeping but now there was a tube in his throat and some plastic piece taped down across his mouth.  “I wish they hadn’t done that to you,” she whispered apologetically.

She reached out to touch his cheek.  His flesh was as hard and cold as a block of stone.  Her stomach turned, remembering someone once told her there was no way to describe how cold a dead person felt.  I’ve never touched anything so cold, so devoid of life, Anne thought.  Rob’s skin was colder even than ice cubes from their freezer. 

She moved my fingers from his cheek to his hair, smoothing it back.  “I’m so sorry I left you alone, Rob,” she said in a whisper as if she was afraid she’d disturb his sleep. “I should have called the doctor back.  I didn’t know this would happen.”  Grief and guilt surged through Anne’s body as her eyes filled with tears. 

She leaned over to kiss Rob’s cheek.  She never would have tried to kiss any other loved one who’d died.  She would not have been able to endure the icy coldness of anyone else, but this was her Rob -- the man she’d loved for 18 years.  How could she not kiss him?  Anne began to talk to him then, telling him how much she’d loved him and would always love him.  She reminisced lovingly about the last time they went to the beach … it was Easter Sunday, just before Rob fainted at work.

Anne heard the door open as she kissed Rob again. She half turned and saw Dan slowly closing the door behind him, staring wide-eyed at Rob.  He had a horrified look on his face … either from the shock of seeing his dead brother or perhaps he’d seen her kiss Rob and he was repulsed.  She couldn’t tell; he didn’t speak.

“Do you want to say goodbye to him?”  Anne asked.

“No!” Dan exclaimed, shaking his head vehemently.

She turned and quite deliberately kissed Rob again.  “Goodbye for now, my love,” she said lovingly.  Feeling lightheaded, Anne paused to take a deep cleansing breath.  None of this felt real.  Anne didn’t feel real either.   She watched herself straighten up and tell Dan she was ready to go now. 

 


Thursday, March 3, 2022

"Fixing" Deafness

 Once upon a time, I took a Deaf Culture class to finish up a late-in-life degree in education.  One hot topic was all the ways hearing people try to "fix" Deaf people because they view deafness as a state of "broken" being.  Deaf people don't see it that way.  

When my parents went to schools for the deaf in the 1930-40s, the most preferred educational method was oralism.  My mother and my aunt went to a school that used the oral method and they were punished severely if they even gestured for something.  They endured hours of lipreading training which did little to help them "fit" into the hearing world.  In fact, both my mother and my aunt learned sign language on the sly.  My father was fortunate.  His school was one of the few that allowed the use of sign language.

The 1990s brought about new techniques to soothe hearing parents of deaf children, who wanted their kids to fit seamlessly into a hearing world.  The first was non-invasive and meant to enhance lipreading and speech.  The second was surgical and had the Deaf community up in arms.

The non-invasive method is called “cued speech.”  This definition comes from Audiology Online: “Cued Speech is a visual communication system which, in American English, uses the natural mouth movements of speech in combination with eight handshapes (which distinguish consonant phonemes) in four different locations near the mouth (to distinguish vowel phonemes). The cues added to the mouth movements make all the phonemes of spoken language look different. Consonants are 'cued' in vowel locations, allowing the cues to be synchronized with the spoken language, syllable by syllable.”  https://www.audiologyonline.com/articles/an-outline-of-cued-speech-1264  Originally, it was meant to teach deaf children to read. 

Hearing parents favored cued speech over American Sign Language (ASL) for their deaf children because it was closest to English.  When I was an interpreter for a high school, there were cued speech interpreters as well as ASL/Pidgin sign language interpreters like me.  Their deaf students didn’t use sign language except to communicate with Deaf peers in the lunch room.  The parents of cued speech students didn’t want their children signing and so once again their signing abilities were kept secret.

How well did cued speech work?  I interpreted a math class for an ASL student.  Sitting next to my student, Anne, was one who used cued speech, Bella, and had her own interpreter sitting next to me.  What a sight we must have been while the teacher was lecturing! 

Interesting enough, the cued speech students didn’t use the hand shapes when they were answering in class.  They voiced only.  One day the teacher called on Bella to answer a question.  Bella answered aloud.  Her speech was typically “deaf” – flat, no inflections, and mispronounced words.  The teacher and Bella’s interpreter stared at her blankly.  The interpreter then signaled to Bella to repeat her answer with cues.  Bella refused and spoke again. 

 

Normally interpreters don’t intervene with another unless there’s a situation in which the other interpreter is struggling.  Bella wasn’t my student but I was so used to Deaf speech I just voiced aloud what Bella was saying and everyone was relieved.  There was a brief signed exchange between Annie and Bella.  Annie signed, “You see?  You should learn to sign and then you can share my interpreter.”

After class, Bella stopped me.  She signed “You understood me?” and I answered “Yes, my parents are deaf  and your speech is like theirs.”  She nodded and smiled.  For the following year, Bella “rebelled” and asked for an ASL interpreter.  Two other cuing students also wanted their Individualized Education Program (IEP)s changed so they could have ASL interpreters.

My parents and their friends in the Deaf community felt sorry for the deaf cuing students, remembering their own childhood experiences with enforced lipreading.  They believed the children were unnecessarily and cruelly prevented from using their own natural language. 

A new surgical intervention was introduced so that deaf children could “become hearing”:  the cochlear implant.  “A cochlear implant is an electronic device that partially restores hearing. It can be an option for people who have severe hearing loss from inner-ear damage who are no longer helped by using hearing aids.

Unlike hearing aids, which amplify sound, a cochlear implant bypasses damaged portions of the ear to deliver sound signals to the hearing (auditory) nerve. …” https://www.Annieoclinic.org/tests-procedures/cochlear-implants/about/pac-20385021 Hearing parents leaped on implants, viewing it as a miracle cure for their children’s deafness.  Deaf adults were horrified by the device not only because of the possible side effects of implantation but because they viewed the devices as an assault on sign language and their culture.

When the device is implanted, any residual hearing in the auditory nerves are destroyed.  Parents of young implanted children have to be sure to remove the connections before the little ones can go swimming or jump on ball pools or trampolines.  There is a risk of infection, dizziness, and tinnitus.  Still, hearing parents swallowed the propaganda doctors gave them about how well their children would fit into the hearing world if they got implanted.

Deaf adults felt implanted students would never learn their own natural language, never experience the closeness of the Deaf community, never learn Deaf culture and would be forced to live like fish out of water in the hearing community.  Even with implantation, Deaf adults realized these children would never be able to hear perfectly and communication with hearing people would always be an issue.  As adults, those implanted wouldn’t have the relief of falling back into the Deaf community after coming home from work.

There were two students who’d been implanted while I was an educational interpreter  and neither had been consulted about whether they wanted the surgery.  One was a 7th grader with a cued speech interpreter.  His interpreter told me one day that the child was very angry and resentful about the implants.  He felt they neither helped him hear nor made his speech more intelligible.  He had to keep his signing limited to the cafeteria and felt stigmatized.

The other student was a senior and was also angry his parents went against his wishes about the implant.  He was very content with being Deaf and freely signed with the other two deaf seniors.  He felt he should have been allowed to say no to the surgery.  He complained he couldn’t taste food since the implant.

Deaf parents of Deaf students have tried repeatedly to reach out to hearing parents.  They wanted to explain that Deafness wasn’t anything to fear.  Sign language has been recognized as a legitimate foreign language and some schools have added it to their programs along with Spanish, French and German.  Deaf culture is rich and embracing.  Their own Deaf children were thriving and far outpaced their cued and implanted counterparts.  The reason for that is the Deaf children begin to learn and use language as early at 6 months old.  Unfortunately, hearing parents had little to no interest in communicating with Deaf parents.

When my second child was 6 months old, we participated in a study at Gallaudet University.  Three groups were involved:  hearing parents with hearing children (my daughter and I), hearing parents with deaf children, and Deaf parents with Deaf children.  The study went for 2 years.  At the end, I asked about the results.  I couldn’t have access to all of the research but the bottom line was the hearing-hearing and Deaf-Deaf group excelled with development of language while the hearing-deaf group lagged far behind.

Interesting side note:  the reaction of parents to learning they have deaf children is striking.  Most hearing parents are alarmed, wondering how they will be able to communicate with their children.  They are afraid for the future of their children.  Most of the children don’t begin learning language until they are of preschool age and then are very delayed.  Parents leap on any way to “fix” their children.

Deaf parents celebrate having Deaf children.  They have instant communication with their babies right from birth.  Their children tend to be more self-confident and comfortable with their lack of hearing.  They are exposed to language much earlier than the deaf kids of hearing parents, making learning English as a second language so easier for them.

My parents were faced with a dilemma and that was how to parent hearing children.  Their issues were similar to hearing-deaf families in the area of communication.  Most Deaf parents sign with their hearing children.  ASL becomes their first language before they are able to speak.  I knew of a minister of the Deaf who didn’t speak until he started kindergarten.

I haven't been an interpreter for years because of repetitive motion injuries to my hands and my parents have since passed.  I haven't been a part of the Deaf community since so I'm not sure how prevalent cochlear implants are these days.  When I took that Deaf culture class, we watched a special that aired on Sixty Minutes.  At that point, Deaf adults had begun to allow their children to be implanted.  Several of the adults decided to get implanted as well.

I guess I am old school.  I am opposed to such surgery on babies and young children who have no voice in being implanted.  My view, wrong or not, is that they should be old enough to make an informed decision.  If one of my children had been born Deaf, I would have raised them with ASL and let them decide for themselves what to do.

 

 

 

 

 

 

Tuesday, March 1, 2022

Where The Light Enters

 I am very curious about people, and that is why I enjoy memoirs, biographies and autobiographies so much.  I saw Where The Light Enters by Jill Biden offered on yet another of my ebook lists, looked to see if it was offered at my library and requested it.  I don’t know very much about Dr. Biden although she was Second Lady for eight years and now First Lady for over a year.

Dr. Biden began with her growing up years, and I began to get to know her.  I had to laugh when she recounted the out-of-the-blue call she got from then Senator Joe Biden.  They have such a loving and supportive marriage.  She wanted to continue her career as a teacher instead of becoming an unemployed politician’s spouse.

There has been tragedy in their lives.  President Biden lost his first wife and infant daughter in a terrible car crash.  Not long after they married, Dr. Biden recounted a terrifying experience in which her husband nearly died from an aneurysm.  Worst of all was the loss of Beau, the son, to the same brain cancer that also killed Senators Ted Kennedy and John McCain.

Dr. Biden is candid about her feelings at different periods of her life.  She is a loving and devoted wife, mother and nana.  She has been involved with issues affecting the well being of women and girls victimized in the Congo and military families here in the US.  She's taught disadvantaged students for most of her career.  Most moving was her experiences with deep grief over the loss of Beau.

I was reading this book when news broke about Ukraine.  It was a welcome respite to escape into the pages of this book and read the words of a woman who loves her family and country deeply.

I Did A Thing!

 I was reading tweets and there was one from the #WritingCommunity about a contest on Writer's Advice.  I went to have a look see and decided I would submit an entry.  Whoa!  Me, 67 years old, submitting an entry with a piece of my own writing.

It's a variation of the Where Were You Roy Rogers I posted earlier.  With the one I submitted, I dug more into my memory, remembering what I was thinking as November 22, 1963 unfolded.  Actually, the memories came back pretty easily.  That weekend is forever imprinted into my brain.

The deadline is tomorrow so I was just in time.  I don't care if I win.  I hope the judges like what I wrote.  That would inspire me to be brave enough to submit other pieces of my scribblings.

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